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A Lifelong Progressive Disease

Currently, there is no cure for NOMID, but there are ways to manage the symptoms of it. Children with NOMID and their caregivers need to adjust to the demands of a complex, chronic condition. One that requires ongoing care especially when inflammation is most active.

Some symptoms may be present all the time, especially the hive-like rash and fever that begin at birth or in the weeks after. Infections and physical and mental stresses on the body can trigger flares.

NOMID is more severe than other CAPS. Its symptoms and organ damage progress over time. These can slow the child’s growth and lead to physical and mental disability.

Other Symptoms and Complications

Although there is no cure for NOMID, effective treatment, monitoring, and support are important to help relieve symptoms. However, it is important to note that patients who are not diagnosed early, or cannot control their symptoms while on treatment, are most at risk for harmful complications. Some of the possible areas affected include:

  • Brain and central nervous system
    - Complications may include: learning disabilities and mental deficit

  • Bones, joints, and muscles
    - Complications may include: joint deformities, inability to walk

  • Eyes and ears
    - Complications may lead to: blindness and hearing loss

Kineret® Helps Reduce
NOMID Symptoms

Patients in studies reported significant improvment with Kineret

More About Kineret Results

A NOMID Journey: Quinn

Learn about one child's diagnosisand how the family manages their symptoms

Watch Quinn's Story

INDICATIONS

Kineret® is a prescription medicine called an interleukin-1 receptor antagonist (IL-1ra) used to:

Kineret is not for children with Juvenile Rheumatoid Arthritis

IMPORTANT SAFETY INFORMATION

Do not take Kineret if you are allergic to:

Before you use Kineret, tell your healthcare provider if you:

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.Kineret and other medicines may affect each other and cause serious side effects. Especially tell your healthcare provider if you take certain other medicines that affect your immune system called Tumor Necrosis Factor (TNF) Blockers. Ask your healthcare provider for a list of these medicines if you are not sure.

Kineret may cause serious side effects, including:

The most common side effects of Kineret for RA include: 

 

The most common side effects of Kineret for NOMID include:

Tell your healthcare provider if you have any side effect that bothers you or does not go away. These are not all of the possible side effects of Kineret. For more information ask your healthcare provider or pharmacist.

Please see full Prescribing Information